Digital Health Research Programme Year 2
Cystic Fibrosis Trust
Cystic Fibrosis Canada
Use smart technologies to explore if it is possible for adults with CF to safely avoid the current routine CF clinic appointments when stable and provide more timely interventions to individuals based on the measurements taken at home.  Use advanced analytical tools to interrogate existing UK CF Registry data to address key questions relevant to people with CF, in particular the very different disease progression trajectories for people with identical CF mutations and the differences in their responses to new disease-modifying drugs.  Ultimately, the programmes of work will help move treatment of CF from Precision Medicine to one of Personalised Medicine: treatment and care tailored to the individual rather than the cohort average.
4.2 Evaluation of markers and technologies