Australian Early Psychosis Collaborative Consortium (AEPCC) Clinical Registry & Clinical Trial & Translation Network
Wellcome Trust
University of Melbourne
We propose to address two key areas of research enrichment and public engagement related to our current Wellcome funding (establishing an Australia-wide clinical registry and clinical trials and translation network for early psychosis, the Australian Early Psychosis Collaborative Consortium, AEPCC). The first is co-design a comprehensive and world leading infrastructure for the meaningful involvement of young people and carers with lived experience of psychosis to support the national network of research trials, including necessary training and support. Secondly, utilising this infrastructure for lived experience engagement we will co-design at least two community engagement projects aimed to increase community knowledge and research uptake in young people experiencing a first episode of a psychotic disorder. At the end of the activity we will have developed a co-designed approach of embedding and prioritising the lived experience of young people and carers in the projects that will be prioritised by the AEPCC. We will also have crystallised our ideas as to how and where people with lived experience would like to be involved in promotion and leadership of the AEPCC. Both these outcomes involve scoping training needs and delivering long-term training and support for young people and carers to perform their roles. By the end of the activity we will have achieved a truly collaborative approach within the network to embed the voice of young people and carers with lived experience or early psychosis that will be able to continue and evolve as the AEPCC continues beyond the initial Wellcome grant period.
No Research Activity assigned