BHD Expert Patient Training
Myrovlytis Trust
BHD France
The Paris School of medicine offers a 8 months training course destined to people who wish to become expert patients in a given field of illness. This training will provide methodology and expertise of how to deal with the BHD syndrome’s various backgrounds. The aim is to gain credibility and experience as an expert patient in BHD, in order to be fully accepted by the medical world and user representation bodies both in France and abroad. 4. I expect this training will enable me to take part in various actions in the future ie funding, congresses, symposiums in order to help research.
7.1 Individual care needs